Bonnie Hunter has a quilt along going on, as a leader and ender. I made a different kind of quilt. This one will be a quilt of valor. Good progress on this one. But borders are needed!
I finished hand quilting this mini, too. It lacks binding, so I will get on that job. I added some spiral embroidery to a couple of the circles. Just a thing to add some interest!
Please see Wendy, here, to take a peek at all the lovely mini quilts in the works!!
********************Nurse's notes********************
Have any of you had a loved one with dementia? I find this frequently, dealing with my patients as a nurse, but I am wondering about family dynamics and how it affects your world. Just exploring how to help my patients best.
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Have a lovely day! Big thanks to Kathy and Cindy for checking up on me. I did not mean to be absent so
long from the blog!
Julie
10 comments:
An Uncle with Dementia died this summer. The biggest challenge was talking with him in the moment. He couldn't remember much and he was still aware he couldn't remember. That was the hardest thing to hear. His daughter struggled with that the most. She had everything possible set up for him to be independent, had meals made and delivered for him, had a cleaner come in....but the communication struggle was real.
For the family sitting with your patient, encourage them to talk, listening, acknowledging the difficulties. Ask if there is a service they need and get SW to provide?
Honestly, it all sucks. Cousin was surprised at how relieved she felt that her Dad lived less than 2y from the time it became noticeable. Even though she misses him, the relief is still there 5 months later.
So many beautiful quilts.
I have worked with dementia patients over the years. Such a cruel disease. My heart goes out to the family members.
You have some fine finishes here, Julie. The large applique quilt looks wonderful. Lots of work on those applique pieces. I cut a 2" strip for binding, too, if I'm making a 1/4" seam around the edge. I like that it folds over just enough to cover the seam and is tight to the edges of the quilt.
I really love the little quilt with the circles and the applique on the border. Both fun and sweet.
Just lovely quilt finishes you've accomplished!! I really like the leader-ender one's colors...really striking...and the applique is simply lovely...
Hugs, julierose
My MIL had dementia for 3 years before passing but I loved spending time just talking with her as she enjoyed conversing about whatever was on her mind that moment. Sad to watch but sadder was her daughter could not handle it and walked away from her disease worsening so I picked up the pieces to patiently visit and help her. She went to a fantastic care place that practices the Eden philosophy which if you look it up, allows the patient to become engaged in activity that helps them care for something other than themselves and their medical needs, such as pets or gardening. So many times I would walk in and see staff or aides just sitting next to her holding her hand and talking to her so touch was important. You didn’t hear her complain or grumble about herself or what ached but rather did I see the cat down the hall that a new resident brought with them. I know her daughter didn’t like the rambling nonsense talk but I let it go. None of us are perfect nor is my speech and thoughts so I wouldn’t judge how she spoke. Right till the end we thought of her as a go getter and never self absorbed so I have admiration for her even if dementia took her away. I am glad you posted as you had a lot to share with us!!! Nice to know about your binding. Kathy
Lovely quilts! I use a 1-3/4" strip and follow Edyta Sitar's binding method. My corners are better now. My hubby is starting to go down that road and all I can say is: patience, patience and more patience is needed.
As a hospice nurse, I worked with many families who were caring for loved ones with dementia. The books “The 36 hour day” and “Learning to speak Alzheimer’s” were helpful with ideas and approach’s for support and comfort for all involved. Kindness is essential, learning to live in the moment, and setting aside expectations very helpful in the day to day. One of the hardest things for families is recognizing that who the loved one was before is no longer the case; the family and the loved one’s lives have changed drastically without their consent. A practical necessity is support from the community; someone to give the caregiver a break.
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A neighbor of mine developed dementia, then her husband died, no children or family nearby. I am thankful our closest neighbor, a former social worker, stepped in and led the way to place the widow in a care facility. We visit nearly every week, as possible. The two of us take simple games, puzzles, and matching cards to do with her, staying about 2 hours. Jenga, Trouble, puzzles 100pcs or less, 20 cards to match (total-not 40!). The fishing game where the fish open and shut their mouths as they go around is lots of fun! We sit and chat with her until she starts repeating herself, then we pull out a game and the three of us laugh together as we play. We take a variety of things to do so that we won't get bored ourselves. We hug and hold hands a lot. Having two of us go together really helps. But I can go alone, my neighbor cannot, as she saw so much of this during her years as a social worker. I hope this specific list helps others in this situation.
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